Information about cerebral ataxia together with bilateral vestibulopathy and peripheral neuropathy please. How instrumental is the atrophy within the cerebellum to the vision distortions and walking difficulties?
We’ll start working on a post on this topic, thanks for the suggestion.
Awesome! Love the fact you guys now have a blog. Really looking forward to the blog posts.
Great to see a blog and love the design of it… ! super easy to use and read. look forward to reading more about the research being done and new things.
Question: the sagittal view seems to show the right hemisphere…
Thanks for your comment. Sorry for the confusion. The image does look like it is on the right. However the MNI coordinates for this cluster are x = -49, y = 1, z = -23. We’ve altered the image above to better show this.
No link to the actual study? The “recent study” mentioned links to a paper that investigates the ability of patients with dementia to recognize famous, not unknown, “tunes”.
Thanks for picking that up. Link has been updated above, and here it is for ease: http://www.sciencedirect.com/science/article/pii/S0028393212001571
So are there any plausible theories out there that might explain the spasticity?
The most likely explanation for the spasticity is the reduction in descending inhibition of the spinal motoneurones from higher centers. We know that we can increase the size of our knee jerk just by pulling our clasped hands apart immediately before the tendon is struck (the Jendrassik manouevre). This is believed to be due to withdrawal of the normal descending inhibition of spinal circuitry. So, our spinal motoneurones are normally kept in check by the brain – withdrawal of this influence following a spinal lesion thereby increases spinal excitability.
I can see that today’s post is somewhat related to this post last week. But wonder why the two are not more heavily linked. I have a brother who has suffered a stroke but is not paralysed at all. However, he can neither read nor write, therefore cannot use a computer and cannot watch television very long and it is too passive for him anyway. I was thinking that the Nintendo Wii might be enjoyable for him, but if it is ALSO beneficial, more’s the good.
Thanks for this interesting information. I didn’t know what was the Jendrassik Manouvre. Maybe it could be use as a tool for elicit some responses of muscles paralysed. Saludos
I have forwarded this information to my son who I believe would benefit greatly from this trial. Thank you
Please let us know if you’d like to receive more detailed information via email, post or phone. We’d be happy to get in touch with you and/or your son.
Hey, I searched for this blog on Bing and just wanted to say thanks for the excellent read. I would have to agree with it, thank you again!
thanks for the comments.
They say dance is an art which is generally related to the movement of the body, the form of expression or social interaction. Who fits this category more that the talented and creative dance group, Justice Crew. What an awesome experience it must have been. The boys bringing their upbeat dance movements and friendly nature to an hard working team. It seems the staff at the research centre have now adapted a good sense of rhythm. Well done Connie, for bringing the fun and joy into the workplace.
Many thanks for your kind words. It truly was an awesome experience.
Good article, lots of intersting things to digest. Very informative
I do believe all of the ideas you’ve offered in your post. They are very convincing and will definitely work. Nonetheless, the posts are too brief for beginners. May you please prolong them a little from next time? Thanks for the post.
We’re a group of volunteers and starting a new scheme in our community. Your web site provided us with helpful info to work on. You’ve done an impressive process and our whole neighborhood might be grateful to you.
Proficiat met de realisatie van deze fantastische app. Iedere dokter, kinesist, en ouderverpleegkundigen over de ganse wereld zouden dit moeten aanschaffen.
Thanks mum, I hope with you that many clinicians will use this app in their clinical practice. There is growing awareness among health care providers that fear of falling is dysfunctional and many ask their patients about it. We hope that our iconFES will provide clinicians with more detail about the level of fear of falling of their patients in a variety of situations.
Proficiat, dit kan een grote impact hebben op het voorkomen en behandelen van kwetsuren bij ouderen. Hopelijk is de zorgsector er evenzeer van overtuigd. Het zit goed en begrijpelijk in elkaar, nogmaals gefiliciteerd.
Thanks dad, our iconFES can be used as part of prevention programs as well. Fear of falling interventions often rely on guided exposure, where an older person practices activities together with someone else first. In order to do this effectively, it will be crucial to identify those activities and different circumstances that concerns people. The iconFES can help clinicians (and researchers) to identify and target the circumstances during which their patient is most concerned about falling.
Great achievement Kim !! We are proud to read this and proud to have such a great person in our family (Kim is our nice). We hope that in the future many old people will get access to this app. Available in Belgium too ?
Francine & Christiaan and Bert from Belgium – xxx
PS: dit is pas een verrassing hé Kim
Thank you for being proud of me. 🙂
The app should be available all over the world. The app detects the language settings of you iPad and, if available, will translate the iconFES app straight into your language. So far, it is available in 5 languages (English, Dutch, French, German, Brazilian-Portuguese) but we are working hard to make it available in many more languages.
How do you interpret the results? That is, do the scores mean anything? High/medium/low falls risk?
Thank you for your interest in using our app. We are currently conducting a longitudinal validation study using the iconFES in over 400 people. Cut-points will be defined using data from this study – expected by mid 2013. Users of the app will be notified of these cut-points with an app update notification.
As for now, the app can be used to identify activities that the older person is concerned of, by clicking on each response category in the “Results Breadkdown” (last page of app).
Note: In ‘Settings’ (of your iPad), it is also possible to change the 30-item iconFES to a shortened 10-item iconFES.
I like it when people come together and share views. Great blog – Measuring stroke recoverywirelessly | the NeuRA blog, stick with it!
Well run and well blogged.
Congratulations – the personal best of 87 min is amazing and your many contributions to charity are truly impressive.
Lots of love
Lyndall and Trevor
I think this is a powerfull weblog with much interesting posts about this stuff. And i just wanna say thanks for this. I’ll subscribe to your website to see if you post more stuff like these!
Great article, I enjoyed reading it.
Wow, what a wonderful experience for all involved, would have loved to have been there and taken part myself and also meet the Crew. Your a very lucky girl Connie and to all staff keep up the great work.
Many thanks for your comment. It was an enjoyable day! I was indeed very lucky and most grateful for the experience. We at Neuroscience will endeavour to keep up the good work in our Research.
What a brilliant opportunity Neuroscience was able to experience. Everyone loves a good distraction from time to time but having Justice Crew visit the work place and teach you the BOOM BOOM – what an exhilarating experience for all. I too hope to win a competition like this…that’s great advertisement for both; Justice Crew and Neuroscience. Keep up the great research.
Boom Boom by Justice Crew was an enjoyed by all who took part in the days event. Not only were Justice Crew great with their song and dance moves, they were lovely gentleman. I wish you the best in winning competitions also in the future. We at Neuroscience will keep up the good work.
What an amazing experience for you all. I also would have loved to be there and join in on all the fun! Everyone needs a break from their day to day routine and this definately would have spiced up the workplace. Well done!
It truly was a lovely experience. Thank you for your comments. Our day at Neuroscience, was indeed enjoyed and very much welcomed the break to the busy days.
WOW!!!!!!!!! How much fun would that have been !!!BOOM BOOM Neuroscience.
How do I get them to my place.
How great it would be to see Justice Crew at Neuroscience!
It was a great experience to be here and cant wait to be back.
Thank you. Justice Crew at Neuroscience was a true delight.
BOOM, BOOM — What an exciting experience that science meets pop culture. This is one of the perfect examples that NeuRA being a science institute characterised by an open-minded atmosphere. Good on you, Connie for bring fun to workplace!
BOOM BOOM indeed! Wish you were here on campus to have enjoyed the vibrant fun-filled day! I know you would have been right into the dance and laughter experienced that day! Hope you to see you back at Neura soon!!!
Thanks, it sure was a great example of science meets pop culture.
I LOVE THIS SONG!!!! i’m so jealous. I wish i worked at neuRa so i could be a part of it and learn to dance like justice crew. Connie congratulations on your win it was an amazing prize and the staff at neura are so priviledged to experience this opportunity in their work environment.
Thank you Nat. The song is great as with the boys from Justice Crew. I wish you were able to have joined us on the day. It was both fun and great for us all. It was an experience to treasure. Thank you for your kind words.
What a great opportunity for a workplace, especially one that does such inspiring & meaningful work!! Also great to see that entering a competition CAN sometimes result in a win!! Who would have thought these 2 groups coming together would result in something so great – nice work!
Many thanks for the words of encouragement. It was a nice win. Brightened the day in many ways.
Congratulations! you’re a very lucky girl, I wish I won! The video looked unreal, please teach me the dance moves haha
Thank you kindly. I am lucky and thrilled to have won. I hope you win something as enjoyable in the near future.
Great article and great work. I know there are over 100 dementias, but wondered if comparison could be made with Posterior Cortical Atrophy (PCA) or, as it is commonly known, ‘Bensons Syndrome’ – a variant form of Alzheimer’s – which seems to disproportionately affect overachieving midlle aged women (early onset). The need for early diagnosis is especially critical beacuse, by the time they are eventually diagnosed, their brain can be so damaged it is difficult to determine where it originated – and it is then all too easy to just lump them into the Alzheimer’s basket.
FABULOUS, you are sooooo Lucky! and your co-workers are too… It’s great to see a workplace enviroment so flexible… Happy Workplace… Happy Team… I’m soooo jealous…. BOOM BOOM…
Thank you for the comments. Yes, we are very lucky at Neuroscience. We are a great group and we are also a great workplace.
Glad you are familiar with the song also.
Thanks for share this excellent post with us is really interesting, keep up the good work
These are actually wonderful some ideas in the blog. You have touched good quality points here. In whatever way continue writing.
Hello, I am Chontell’s great Aunty, her mum Colleen was my sister.
my father Bert Maher passed away in 1960 with this disease we were told then it was Huntingtons Disease. I guess I have been the fortunate
one as now 70 have not displayed the symptoms of this sad disease. I do not what more to say only I am so grateful for Dr Bill Brooks and his team, if only we had had this when I was younger it may have saved me a life of worry, sadness, heartbreak and sorrow just to have the support he is giving those people now. God bless and thank you
Denise Duncan ( nee Maher)
Great article, not much information about this topic on internet. Thank for the post
I am very happy to read this research is going on as I suffer from MSA and knowing that there is no cure is very depressing So great work guys
Hi Scott, don’t know if you remember me, but I came to your presentation (Ageing & Neurodegeneration) back in August 2013 with another lady called Laila. Unfortunately my sister Maureen passed away from MSA last April but I am still committed to raising awareness about this horrid disease. I believe Glenda has some involvement with Prof Wenning’s MDS Global Study Group – hope it is starting to progress, especially here in Australia. Just read your latest article on the Lipid Pathways in MSA as well as your “thumbnail” on MSA, which I will put a link on our Australian/New Zealand Facebook page. If interested, I am sending you an invite to join this facebook page which is a “closed group” for those involved with MSA. Thank you for all the research you are doing on MSA – it is very much appreciated. Regards Linda Williams
My husband is into his 3rd year of MSA sickness and this article really gives hope for the sufferers and their families. Thank you and I hope with this finding an effective treatment can be found to cure this horrible sickness.
Well written, concise information. I thank you.
This looks like a promising way forward to understand the basis of mental illness and the commonalities between the various diagnosis. Good work. Our family would be very interested in findings in this area of research. I wonder, though, what roll physcial fitness and exercise also plays in buiding resilience.
Thanks for sharing, looking forward to the further study!
This ties in with Ellen Langer’s (of Harvard mindfulness research fame) findings where she took elderly people and exposed them to the environment, politics, music etc. of their youths and they became healthier and their brains “younger” in the process. The same has been done with training elderly people to juggle etc., each time finding characteristic changes in brain scans that really are only explicable if one accepts the fact of neuron growth, given the right stimuli, at any age.
my sister has just recently passed away from MSA and I would like to donate money for research for this disease. please let me know where I would send the money.
Thanks for sharing the process of your new research in proprioceptive problems. Look forward to learn your further movements in this field.
Can thIs be detected in living people with schizophrenia, as my son is severely disabled with very poorly controlled unstable schizophrenia
This remain me as I have a bad experience with the my daughter seat belt. I hit another car on the road when setting the my daughter seat belt while driving 😀
Well,maybe more and more advancements will be made in this field.
Hello Sam, I’m sorry for your dad and your family. This is no doubt a disaster, and I can understand your feeling. If I were you, I wouldn’t think much about what’s going to happen in the future. I will just treasure this moment when my father is still with me and this family. Cheer up! It will be all right.
Beautifully written Sam! I used to work with your mum and I can see you get your strength from her.
Hi Sam , do believe me when I say this he would be very proud of you writing such a detailed (of your experience) account .my husband is 65 now with FTD diagnosed 2007at 58 ‘.unfortunately it’s true what you said everybody forgets It’s different ??
The blank looks delayed reactions ,unfortunately they are in nomans land at times if only we cook see & hear what’s going on in this state. Your mum’s very lucky to have you by her sidewalls very best for you all Annette
My dad was diagnosed with FTD and his appetite has increased but he has lost a lot of weight.
Hope more advancements will be made, and significantly reduce the potential risks of children riding motorbikes and quads.
Sometimes we are forget to check if our kids has use the seat beat properly and that the mistake
and sometimes some parents already satisfied when their child put on their seatbelt without notice if they’d use those seatbelt properly and known the importance of using an seatbelt while driving or just want to make their parents not too fussy. I really think that we, parents, should take more attention on this thing
Hello, I’m sorry for your dad and your family.
This sounds wonderful! All the best, I’ll be following your progress.
It is a great topic and thanks for organizing it. “Acceptance” has growing body of evidence. Using what I learnt in the Explain pain 3 course when the concept was introduced in patient care has improved the patient outcome. They actually feel better and happier and are less worried. Slowly the complain of pain also reduces. More over I am a more satisfied physio with what I am doing or telling my patients. I think this is a great opportunity for all in New South Wales. Everyone should grab this chance to utilize the expertise of Kevin who is really good at it.
Good luck Martin and NeuRA team.
That’s great to hear. The workshop aims to facilitate clinical practice, but it is nice to hear it also makes for more satisfied clinicians.
My Uncle is suffering from MSA for about 4 years now, I would like to know if there is any possible trials going on that requires volunteers as he is willing to be a part of it.
Trini, We really admire you for the manner in which you have grasped all the opportunities that have come your way in such a positive manner. As well as improving the lives of senior citizens with this easy and enjoyable exercise regime you have tried to improve yourself at the same time. To leave our family behind, and to have suceeded in your endeavours in a foreign country in the manner that you have is only worthy of the highest praise.Your family must be extremely proud of you. We wish you all sucess in your Phd. programme, and may you only continue to achieve greater heights. If we can be of any assistance please don’t hesitate to call on us.
Harold and Yvonne Berman
I am glad you are curing your schizophrenia. All I am pointing out is mind control & electronic harassment victims has nothing to do with mental illness …unfortunately the society/system does not recognize that there are mind control & electronic harassment victims and thus normally treats/deals with them as if they had a mental illness.
I am very interested in your trials for the Standing Tall Program. We are a group of Seniors 70 to 80 and meet 3 times a week for regular exercises. Approx 8 – 12 people. At the moment we are doing chair exercises to a Rosemary Conely DVD on a large screen and also a Osteo DVd to help strengthen our bones and prevent falls. We live in a Retirement Village in the Northern Suburbs of Perth Western Australia and wondered if you would consider including us in your trials. I tried downloading the Ipad app for my husbands ipad including registering it, but it led us to a hockey website which seemed to be a development site.
I would appreciate knowing if the cited program reaches Melbourne. I need more exercises as, at 85, my balance has responded to some exercise but I need more, in order never to fall again.
How can I found out more about the sensorimotor training, currently in the UK suffering LBP. Anything I could try out?
Hello. As a Movement Educator currently training in Clinical Somatic Education (a movement education process which involves the sensorimotor system) I am very interested in what you define as sensorimotor training. Please would you elaborate? Many thanks
Interesting to hear and a way forward. I’ve been using sensorimotor training on a background of the individual having a working knowledge of their pain (moment to moment self-coaching: what do I need to think-do at any given moment) for some years.
Hi nice to hear about this research.I am from Brunei. I am at the moment managing a chronic back pain patient using tactile aquity training and mirror therapy. Its just been 2 sessions and wont be able to tell the result at this stage. Hope to see whats the result from your studies on this type of management
Thank you for your insights.
What references do you have for these insights? I am not able to fact check what you are writing because there are no references.
I am quite sure that you are misinterpreting insight number 4 as it is not possible for us to predict injury very well in generel and I would highly doubt tweeting information would inform us when we are at risk of having an injury occuring.
Injury is not the same as pain and pain is not the same as injury. This is of course semantics but it perpetuates biomedical beliefs that pain is only due to injury and that pain comes from the body. I would highly recommend you altering the phrasing of number 4 as it is not up to date with current science and does not provide information that is beneficial or valuable to patients nor health care professionals. Giving advice that focuses on protecting the back can actually increase patient hypervigilance and be a part of why they experience back pain. Instead advice focusing on what positives one can do for one self would be a better option.
This study provides some evidence for the above claim and I can link to more studies if necessary http://www.ncbi.nlm.nih.gov/pubmed/24218376
It is very interesting though a tweet may give us information on increased risk of recurrence of pain and it may be possible we can use this information to decrease the risk of back pain recurrance.
If possible I would very much appreciate the references for the claims provided in this article.
Thanks for your comment Simon. Please see the links to the relevant references below. Also, please see a direct response from lead author Hopin Lee to your comment on the twitter paper below.
I think the finer details of our study got lost in communication. You are right about the important distinction between injury and pain. In our study we simply set out to predict “self-reporting back pain”. It is unclear whether these unsolicited self-reports of back pain reflect a true “injury” or a “painful experience”. I suspect we may have captured a combination of the two constructs. It is also important to note that they are not entirely mutually-exclusive constructs. Despite the well documented mantra: “injury does not correlate with pain”.
For more details…
Here is the full paper: http://jamia.oxfordjournals.org/content/early/2015/12/11/jamia.ocv168
And an exclusive blog we posted some time ago: http://www.bodyinmind.org/tweeting-back-pain-study/
Dr Markus Hübscher
Conjoint Lecturer, Prince of Wales Clinical School | UNSW
I have been diagnosed with severe apnoea with up to 70 episodes per hour. I would like to be assessed by your clinic for possible treatment and possibly participate in your research. I am a 65 yr old female in general good health. I can be contacted by email or phone on 0419270359 I live in the southern Highlands of NSW
Our Sleep Study team will be in touch with you. Regards.
Well done Jessica. Very interesting
I live in Brisbane. My husband had a spect scan that concluded he has frontal lobe degeneration. I suspect a gene deficiency in his family. Who and how can I find help to diagnose and advise me on his specific symtoms?
Dennis, I read this to Veda. She cocked her head, nodded & said “Nice” (woman of few words).
You moved me to tears…yes, we both get it.
Love this,Dennis. We met in Budapest at A,D. I conference
-Dennis, I have just read your 2 blogs and realise how much “music and memories” can mean . .As there are a number of carers in the support group I facilitate who do not use a computer I would like your permission to circulate it in print..Your experiences may help others on the journey with dementia of any kind. Thanks. for your prose.
Dennis, you are amazing and so articulate. You are spurring me on to put into print all the memories that I have of my grandparents and my childhood. My grandchildren have no idea about playing cricket down the street using the lamp post as a wicket and not going home until the street light was on and I heard a call from my mum up the street. Great times, great memories.
I hear you Dennis, well said ✅
Hi I have FTD I’m now 62 had it for 4 years.Im a floyd man off to see gilmour at albert hall tonight.Music is so good for us.as u say takes you to places you were years ago.
Ive also been diagnosed with osa but struggling to use the equipment so would like to be part of this study if possible please. Sue 0488603532
Love it Dennis. You would be completely at home in our ‘Happy Hour’ sessions. We sing and play everything from 1898 to 1988. Good tunes & lyrics work for everyone no matter their age or ability. Besides my husband is a secret Yes fan and so he deffo has his moments!!
Your usual articulate self Dennis. Keep it up. Cheers from Thailand, Nick
Hi, really cool stuff! The best Archetecture is functional art. When combined with pure art then it creates a really great livable space.
First paragraph is awesome to understand empathy.
Vraag.wat doet plasma geproduceerd uit waterstof met het neurologische verbinding van de hersenen?
Tru here. Thank you for sharing, Dennis.
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